Hawking bo iskal nezemljane

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Although the life expectancy of a person with ALS averages about two to five years from the time of diagnosis, this disease is variable, and many people can live with the disease for five years and more. More than half of all people with ALS live more than three years after diagnosis.
About twenty percent of people with ALS live five years or more and up to 10 percent will survive more than ten years and five percent will live 20 years .

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There are people in whom ALS has stopped progressing, and a small number of people in whom the symptoms of ALS reversed

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Uporabnik jest5 pravi:
Malo ga matra razumevanje, kaj češ.
The average survival time

Ali če kopiram iz strani posvečene ALS

Citat:
Although the life expectancy of a person with ALS averages about two to five years from the time of diagnosis, this disease is variable, and many people can live with the disease for five years and more. More than half of all people with ALS live more than three years after diagnosis.
About twenty percent of people with ALS live five years or more and up to 10 percent will survive more than ten years and five percent will live 20 years .

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In še glavna zarota

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There are people in whom ALS has stopped progressing, and a small number of people in whom the symptoms of ALS reversed

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Uporabnik jest5 pravi:
5% jih živi okoli 20 let. Nekaj % jih živi 20+ let.
In če bi slučajno znal brati( There are people in whom ALS has stopped progressing, and a small number of people in whom the symptoms of ALS reversed ), bi mogoče pogruntal, da se pri določenih napredovanje bolezni popolnoma ustavi, pri parih pa se stanje celo popravi.

Komedija je v tem, da imaš sebe za nekega razsvetljenca, ki "vidi več", a dejansko padaš na same neumnosti

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Has he lived so long because he got the disease when he was young and had the juvenile-onset type?

Juvenile-onset is diagnosed in the teenage years, and I don't know enough about his course to say. But it's probably something similar to juvenile-onset disorder, which is something that progresses very, very, very slowly. I have patients in my clinic who were diagnosed in their teens and are still alive in their 40s, 50s or 60s. But not having ever examined him or taken a history, it's a little hard for me to say.

He's a very good example of the sparing of the non-motor parts of the brain that can occur.

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How frequent are these cases of very slow-progressing forms of ALS?

I would say probably less than a few percent

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How much do you think Stephen Hawking's longevity has been due to the excellent care that he has received versus the biology of his particular form of ALS?
It's probably a little bit of both. I just know him from television, so I don't know what kind of interventions he's had. If he really isn't on a ventilator, then it's his biology—it's the biology of his form of the neurodegenerative disease that determines how long he will live. For trouble swallowing you can elect to have a feeding tube placed, which basically takes malnutrition and dehydration off the table. But mostly it's about the biology of the disease

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What does Stephen Hawking's case mean for people who have the disease?
It's just an incredible, incredible example of the variability of the disease—and the hope for patients who have it that they could also live a long life. Unfortunately, it's a small percentage of people for whom that actually happens

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